Cancer Survivors's topics - tribe.net

HL291 Prostate or Breast Cancer Get £80 for a one hour interview!

Belinda — Wed, 11 Jun 2008 08:13:56 GMT

HL291 Prostate Cancer Get £80 for a one hour interview!

Dear Friends

The Patients Voice would like to take this opportunity to invite you to a new research project.

We are looking to interview people in the UK who have prostate or breast cancer. The project will help improve the quality of the information provided to patients and carers in your situation.

The interview lasts for sixty minutes and will be conducted face to face. This means you can participate from your own home or in a nearby hotel if you prefer. By way of thanks we will give you £80 for your help.

If you are interested the best way forward is to join The Patients Voice itself by going to

Http://www.thepatientsvoice.org

This is our special research community and it gives everyone the opportunity to participate research projects. So don’t delay - join today.

Alternatively you can email my colleague Bina who is running this project. Her address is bina.savla@healthcarelandscape.com

If you know somebody who may qualify please do let us know. If they do qualify we will reward you with
Thanks very much for your help in advance.

With best wishes
Belinda Shale
www.thepatientsvoice.org

PS Please remember all our projects are research projects and we never try and sell you anything. Ever.

posted in Cancer Survivors - 0 replies

New Tribe

skipwell — Sat, 15 Dec 2007 07:54:57 GMT

I'll spare the ado and cut to the chase:

http://tribes.tribe.net/imtooyoungforthis

and

http://www.imtooyoungforthis.org

Thank you... :-)

posted in Cancer Survivors - 0 replies

Funding Assistance for Mammograms for women UNDER 35?

dandysparkle — Fri, 09 Nov 2007 17:13:20 GMT

(Cross posted to the Breast Cancer Tribe)

Does anyone have any resources for financial assistance or funding programs for those that are under the age of 35?

I have been banging my head against a wall trying to find a program for women under 35 (though most seem geared for 40+)...

I have tried:
Susan G. Komen Foundation: The patient must be 35 before a funding voucher is issued.
American Cancer Society: The patient must be over the age of 40.
Cancer Detection Programs: Every Woman counts: The patient must be over the age of 40.
CDC: The patient must be over the age of 40.

Has anyone had any other experiences with these? (Crossing fingers that maybe I missed something...)
Have you been unsuccessful with other places? (So that I may cross them off my lists to look into...)
Have you had successes elsewhere? (Please tell me SOMEONE has found a place to help young women in this situation...)

posted in Cancer Survivors - 0 replies

I am new here an hoping for some help...

Newt — Tue, 20 Feb 2007 06:38:49 GMT

My father has just been diagnosed with the beginnings of prostate cancer. He is very low income and on Minnesota Care. Anyway he discovered that Minnesota care would only cover 10,000 toward surgery. In this day and age that doesn't go far. Anyway the surgery is $39,000. He will be 65 and on Medicare? next year, but waiting that long could be very bad. He tried to get on medical assistance at the hospitals suggestion but he was denied. I am not sure why. They do own their own home with most of their income coming from the rental of a small apartment in it so selling it would mean loosing a major part of their income and have some other penalties as they had received a grant and loan to fix the roof and some other things much of which will be forgiven in 10 years I think. I don't really understand the urban renewal grants except to say think twice before using one, but that is another story. If he sold his house he would not be able to raise enough money for his surgery in any case. It isn't worth much. What I am wondering is are there places he can go for financial help. I know I don't have anything close to that kind of money and neither do my brother or sister. We are all very worried about this and don't know what to do. I was hoping that someone here would have some ideas. I am not sure why Minnesota Care pays for prescreaning when it won't cover the surgery. That is just cruel.

I would be greatful for any help anyone can provide. I am not sure what to do next.

posted in Cancer Survivors - 4 replies

Casting Call—Tell Your Breast Cancer Treatment Stories

Sam — Mon, 18 Jun 2007 20:03:24 GMT

We are looking for postmenopausal women in the mid-Atlantic States area who are taking or
have taken hormonal treatment, specifically aromatase inhibitors, for the treatment of
breast cancer.

If you are facing or have faced breast cancer and are interested in sharing your story on
camera, it will be a unique chance for you to help support other women with breast
cancer.

Please contact the Philadelphia Casting Company:
project@philacast.com

Casting closes VERY soon, so call or e-mail ASAP.

An honorarium will be given for your contribution.

posted in Cancer Survivors - 0 replies

Non Hodgkins Lymphoma

Kraven — Thu, 09 Sep 2004 02:17:39 GMT

Had it? Have it? Surviving survivors should post about experiences.

First diagnosed at age 15, and then at age 24 found to be recurrent, I have enjoyed the last few years of no needles.
Now, I'm 32 and I'm enjoying my life and filling all of the small compartments of time with fun.

posted in Cancer Survivors - 6 replies

What do you wish others had done?

sugarbritches — Wed, 14 Mar 2007 15:49:00 GMT

My dad was just diagnosed with pancreatic cancer. While the surgery is tricky and the survival rate low, he has a great attitude and is ready to fight. As a family member, it's hard to feel so helpless as he goes through this. Of course I am doing everything I can to let him know how much I love him, that I am here for him whatever he needs, but I wish I could better anticipate what it is that he does actually need. I know there are days he wants to talk about it, and days he doesn't.

Do any of you have stories about ways that friends or family members supported you -- tangibly or emotionally -- through your cancer treatment, or things that you later realized would have helped at the time, and wish someone had done for you?

posted in Cancer Survivors - 5 replies

Healing Breast Cancer!

Wed, 17 Jan 2007 05:22:18 GMT

Help!

One of my best friends now has breast cancer. This is a tough one for me. Early in 2006 another one of my closest friends passed after 2 years of chemo and a stem cell transplant. It was the chemo that killed her BTW. Now another one of my friends has cancer. Both women, both under 30. The difference here is that my friend now refuses to pursue chemo, drugs or radiation. She believes that if she does not recognize the tumor and pursues natural healing, it will go away.

God bless her!

I am going to be taking an active role int he healing process. I have already started performing energy work on her breasts. I have her drinking Tahitian Noni juice and chlorophyll. I need advice!

Namaste

posted in Cancer Survivors - 4 replies

great news no more hairloss during chemo!

kimarie — Sat, 01 Jul 2006 05:18:58 GMT

hello friends
tell everyone thymus gladulars (capsules) thymuskin shampoo (topical) prevent hairloss during chemo
i just went on Janeane Garofolo's radio show and shared this info and the response was amazing, it was then i realized not enough people know, so i'm spreading the word.
blessings
kimarie

posted in Cancer Survivors - 4 replies

Panera Bread Honors National Breast Cancer Awareness Month With Pink Ribbon Bagels

Jenna — Fri, 22 Sep 2006 20:07:14 GMT

During the month of October, Panera Bread bakery-cafes throughout the country will offer a specially created Pink Ribbon Bagel in honor of National Breast Cancer Awareness Month. Panera will donate a portion of the proceeds from each Pink Ribbon Bagel sold to a variety of breast cancer causes, including the Susan G. Komen Breast Cancer Foundation and Y-ME National Breast Cancer Organization.

In 2001, Panera Bread franchisee and breast cancer survivor Sue Stees, developed the Pink Ribbon Bagel as a way to help support the cause to eradicate breast cancer disease.

Visit www.panerabread.com to learn more about the Pink Ribbon Bagel and to search for a Panera near you.

posted in Cancer Survivors - 0 replies

Susan G. Komen Race for the Cure -- September 24 along San Francisco's Embarcadero

ericsf7 — Fri, 08 Sep 2006 22:53:45 GMT

The 16th annual Komen San Francisco Race for the Cure will take place this year on Sunday, September 24, 2006 at a new location along the Embarcadero, San Francisco. The new site is more visible than the previous location, bringing the possibility of raising more money to support breast cancer research, education and treatment. This 5K Run/Walk or 1 mile Fun Walk starts at 9am at the crosswalk at the SW corner of the Ferry Building. The run goes along the Embarcadero, around AT&T Park, and back along the Embarcadero.

Also new to the race this year: Kids for the Cure. Any child between the ages of 6 and 12 can register for only $10 and will receive a child-sized Race for the Cure T-shirt, available to the first 500 children registering.

Every registered participant receives an official Race T-shirt. Breast cancer survivors, who are the inspiration for the Race for the Cure, may pick up complimentary pink T-shirts and visors from the Survivor Booth on Race day. In addition, all Komen Race participants are encouraged to wear In Memory of and In Celebration of back signs, honoring loved ones for
their strength and courage.

A special survivor recognition ceremony will be held in Justin Herman Plaza on Race day in front of the stage at 10:30am to honor all breast cancer survivors. The top three finishers in the Breast Cancer Survivor Division will receive commemorative awards donated by Mark Harrington Crystal, in addition to the first, second and third place finishing prizes. First Place Master Survivor (age 60-64) and First Place Senior Survivor (age 65+) will also receive special commemorative awards.

In addition to individual participants, teams are invited to compete in the following categories: Fastest Team: first and second place; Largest Team: team with the most participants corporate/government, small business, family & friends, schools/education; and Highest Fundraiser Team first and second place.

The goal of the 2006 Komen San Francisco Race for the Cure is to raise $100 per participant, the cost of a single mammogram. Money raised from last years race has been granted to 11 organizations in the 9 Bay Area counties and also has helped to create a program for free breast cancer screening and mammography services for uninsured Bay Area women.

The Susan G. Komen Breast Cancer Foundation was established in 1982 by Nancy Goodman Brinker to honor the memory of her sister, Susan Goodman Komen, who died from breast cancer at the age of 36. Today, the Komen Foundation is an international organization with a network of 75,000 active volunteers working through local Affiliates and events like the Komen Race for the Cure to eradicate breast cancer as a life-threatening disease. For more information on breast health or breast cancer, please visit www.sfkomen.org or call the Foundations National Toll-Free Breast Care Helpline at 1-800-IM AWARE (1-800-462-9273).

posted in Cancer Survivors - 0 replies

Beautiful Tattoo Art over Scars

sasha — Thu, 17 Aug 2006 20:31:17 GMT

I'm a tattoo artist in San Francsico specializing in botanical/nature tattoos. I also do a lot of work covering scars. Tattoo art can be a powerful reclaiming of a body after surgery. Some people cover the scars completely, while others create a design to interact with the scar. The tattoo cannot erase the scar or change the texture, but it can be a beautiful symbol of survival and thriving.

Please feel free to contact me for more information. My websit is dragonflyink.com

thank you for your time,
Sasha
Dragonfly Ink Custom Tattoo, women owned and operated

posted in Cancer Survivors - 1 reply

Changes

sinaguavalleyranch — Mon, 09 Jan 2006 20:32:41 GMT

Did you change as a result of your cancer? For the better or the worse? What was your biggest epiphany?

posted in Cancer Survivors - 4 replies

COLORADO Medical Marijuana INFORMATION

COmidnightrider46 — Wed, 10 May 2006 07:40:41 GMT

FOR ALL THE LATEST COLORADO Medical Marijuana INFORMATION see:
http://medmarijuana.meetup.com/119/

************************************************************************
Colorado Springs Medical Marijuana Support Group
THIS THURSDAY

Where: Penrose Public Library
20 N. Cascade Ave
Colorado Springs, Co. 80903

When: May 11 2006 @ 6:30pm.
Then the second Thursday of each month @ 6:30pm.

Purpose: To provide education about
Medical Marijuana to
patients, caregivers and the
general public!

If anyone has any questions, concerns or suggestions for us let me know.
Contact Roger at abrronas@adelphia.net
***************************************************************************

NEW CLUB WOW!!
North Colorado Springs Cannabis Therapeutics Compassion Club

Monday, June 5 at 6:30pm - 8pm in Conf. Rm2
(First Monday of each month and Possibly the third—depending on interest)

The East library at 5550 N Union Blvd, Colo Spgs, CO 80918.

Call for more information contact Michael Lee at 719 380 8444
or cannabis_therapeutics@msn.com
****************************************************************************

WESTERN SLOPE BEGINS
Its official Colorado Cares Medical Marijuana support group for patients and caregivers will be held July 29th in Grand Junction Colorado near the downtown area location will be announce at the end of June. More and contact information soon to come.
****************************************************************************

North Denver Medical Marijuana Discussion Group
'NEW' OFFICIAL MESSAGEBOARD: http://medmarijuana.meetup.com/119/

Zheng Chi Medical Marijuana Discussion Group
Front Range Community College LIBRARY
(112th,approximately six blocks West of Federal Ave.), Westminster
Room L211

7-9pm Monday May 22
7-9pm Monday June 19

Zheng Chi or "Righteous Chi" is the Chi that is released to eliminate PAIN through the needles of Chinese Acupuncture, an effort that seems to be so much a regular part of my life, as I suffer with my Fibromyalgia flare ups! An entire team of doctors regularly helps me keep a better focus on quality of life, and to minimize the severe pain which plagues me. Medical marijuana is only one of the components for relief.

DISCLAIMER: This is solely an Educational gathering, bringing the public, medical marijuana patients, caregivers, interested parties, and others together for the purpose of discussing answers to questions surrounding the option of medical marijuana in Colorado. ABSOLUTELY no medications will be dispensed and NO DOCTOR will be onsite. RULES PROHIBITION any discussions of specific instances of securing medication with "NO Drug Dealing" allowed in "any way, shape or form" onsite during this educational discussion forum.
'New'OFFICIAL MESSAGEBOARD: http://medmarijuana.meetup.com/119/
Contact: TTipper39@yahoo.com

posted in Cancer Survivors - 0 replies

Cancer Anxiety Study with Psilocybin

Alicia — Thu, 30 Mar 2006 03:02:08 GMT

Hello and thank you for an opportunity to visit your community. I'm a study coordinator for a clinical trial going on at Harbor-UCLA Medical Center in Los Angeles. The trial has been going for about a year now, and we're looking for seven more people who might want to participate. (I'm new to this process, so if this is not an appropriate forum for this posting, please say so!)

I've included some basic background on the study below and a link to our posting on www.clinicaltrials.gov.

Many Blessings,
Alicia

************

The Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center is conducting a study designed to measure the effectiveness of the novel psychoactive medication psilocybin on the reduction of anxiety, depression, and physical pain.

The significance of this study is that it is addressing the important issues of psychological and spiritual well being of people who have advanced cancer. Psilocybin is a novel agent which produces a profound alteration in your state of consciousness. It is the main active ingredient found in “magic mushrooms”.

Our specific aim is to learn whether this psychoactive drug, psilocybin, might be effective in reducing anxiety, depression and physical pain. For each participant there will be two overnight stays at the hospital. In one session you will be given a placebo and in the other you will get the active medication, but no one will know which drug is administered when. You will be asked to fill out questionnaires about how you feel, your pain levels and your moods. There will also be at least two psychotherapy meetings before the study sessions, so that you are fully aware of what to expect and to have all your questions answered.

In order to take part in the study, volunteers must have advanced-stage cancer and be between the ages of 18 and 70.

For more information about the study requirements, please visit this Web site:

http://www.clinicaltrials.gov/ct/show/NCT00302744?order=1

posted in Cancer Survivors - 0 replies

New Tribe

healingtime — Sun, 05 Mar 2006 20:48:02 GMT

We are exploring healing through Emotional Movement. Come join us if this resonates with you:

http://tribes.tribe.net/feelingreal

posted in Cancer Survivors - 0 replies

Lance Armstrong

mikela — Sun, 07 Aug 2005 02:06:15 GMT

Lance came back from testicular cancer and won the Tour de France. In 1982, I went back to teaching 9th grade two weeks after last chemo.

posted in Cancer Survivors - 1 reply

Breast Cancer Survivors Needed

tatdude — Thu, 07 Jul 2005 00:27:54 GMT

Hello everyone, this is France the Founder of the Healing Art Foundation, we need Breast Cancer Survivors who may be interested in Getting a Tattoo as a Unique option to recovery. Healing Art Foundation provides tattoos, permanent make-up, areolia repigmentation, cover ups and a support system all for Breast Cancer Survivors, done by Tattoo Artists. We are Awareness, Prevention and Survival. This unique option for both Men and Women. If you are interested please check out http://www.healingartt.com . Special request for any Breast Cancer Survivor located in Miami, FL contact me ASAP.
Thanks,
France

posted in Cancer Survivors - 0 replies

Great resource and support at...

kizzy — Mon, 13 Jun 2005 19:07:57 GMT

New to this tribe and wanted to share my favorite links!

My sister in law has a great Flickr group called Too Sexy For My Hair!

People share intimate photos and stories about thier (or loved ones) experience...check it out here:

http://flickr.com/groups/27763725@N00/

It's really easy to join and upload pictures and has been a healing and touching group to be a part of.

Also check out her blog at: http://toosexyformyhair.com/

and my brother's great new site: http://www.cancer-news-watch.com/

Thanks,

Kizzy

posted in Cancer Survivors - 0 replies

New guy here.

joefish — Sat, 28 May 2005 00:55:15 GMT

Hello All

posted in Cancer Survivors - 0 replies

Hello Everyone I am new to the tribe and want to introduce myself

tatdude — Mon, 28 Mar 2005 08:36:42 GMT

Hi my name is France and I would like to introduce myself to you. I run a foundation Called the Healing Art Foundation which brings together Tattoo Artist with Breast Cancer Survivors for "Art for a Cure". We offer a unquie option for Men and Women, Please check it out www.healingartt.com and please tell a friend we are here if and when you need us.
Thanks,
France

posted in Cancer Survivors - 1 reply

Melissa Etheridge

Mon, 14 Feb 2005 15:47:41 GMT

Need I say more!! Her performance and show of strength during the Grammy's was beyond inspirational.

posted in Cancer Survivors - 0 replies

diagnosis

flowernightmare — Thu, 18 Nov 2004 17:39:26 GMT

i'm not exactly sure why i'm writing this, but i was wondering if anyone could share what they did to get through the time after you learned you had cancer -- how did you deal with it?

i was diagnosed with malignant melanoma a couple of weeks ago, had surgery and sentinel node biopsy, and found out yesterday it has metastasized into at least one lymph node and i'll have to go through possibly more surgery and immunotherapy.

i'm still reeling from this, partly because i've obsessively researched my disease and know the numbers and the odds, and partly because it feels like everything is now falling apart. suddenly i don't know how long i'll be able to work, to support myself, so i have insurance. if i get too sick to work and lose my job, what happens then? there are just so many questions.

anyway, i guess i'm just wondering if there were people who could share their experiences, maybe offer some reassurance that i can get through this no matter how it feels right now.

thanks.

posted in Cancer Survivors - 1 reply

New Scientific Info.

Lisa — Sun, 01 Aug 2004 04:05:12 GMT

Cloning Experiment Shows Cancer Reversible - Report

Sat Jul 31, 5:01 PM ET Add Health - Reuters to My Yahoo!

By Maggie Fox, Health and Science Correspondent

WASHINGTON (Reuters) - A cloning experiment may show that the body itself has the ability to reverse cancer, U.S.-based researchers said on Saturday.

They cloned mouse embryos from a melanoma skin cancer cell, and created healthy adult mice using some of the cloned cancer cells, showing that malignancy is not the inevitable fate of a cancer cell.

"This settles a principal biological question," said Dr. Rudolf Jaenisch of the Whitehead Institute at the Massachusetts Institute of Technology (news - web sites), one of the country's leading experts in cloning.

He said while the genetic elements of cancer cannot be reversed, the epigenetics -- how the genes are actually turned on and off -- can be.

The finding, published in the journal Genes and Development, point to a new way to treat cancer, said Lynda Chin of the Dana-Farber Cancer Institute and Harvard Medical School (news - web sites), who worked on the study.

"Drugs that target the cancer epigenome may prove to be a key therapeutic opportunity for diverse cancers," she said in a statement. In other words, it might be possible to silence a cancer gene.

Cancer begins when certain genes mutate, or when a certain, inherited version of a gene somehow gets turned on.

This can happen through various so-called epigenetic processes -- when other molecules in a cell affect genes without actually altering the sequence of DNA.

In the experiment, Konrad Hochedlinger and Robert Blelloch, both researchers in Jaenisch's lab, took the nucleus from a melanoma cell and injected it into a hollowed-out mouse egg cell.

This started the egg growing as if it had been fertilized by sperm.

They did not allow this embryonic mouse to develop, but harvested from it embryonic stem cells -- immature cells that have the potential to become any cell in the body at all.

They put these stem cells into healthy mouse blastocysts -- very early embryos only a few days old. Some of these developed into healthy, normal mice.

"It's important to note that the stem cells from the cloned melanoma were incorporated into most, if not all, tissues of adult mice, showing that they can develop into normal, healthy cells," Blelloch said.

They included skin pigmentation cells, immune cells and connective tissue.

This could only have happened if the cancer cells had lost their malignant qualities, at least temporarily, the researchers said.

But when certain cancer-related genes in these mice were activated, they developed malignant tumors at a much faster rate than normal mice, the researchers added.

Many researchers want to try similar experiments with human cancer cells, but the administration of President Bush (news - web sites) forbids the use of federal funds for such study because it would involve the creation of what is technically a human embryo.

posted in Cancer Survivors - 0 replies

Cancer History

Lisa — Sat, 24 Jul 2004 06:00:25 GMT

I was diagnosed with breast cancer at 28 which was about 12 years ago. (It doesn't seem like that long ago.) I went through a mastectomy, chemotherapy and no reconstruction. I met my husband after all that! And now I have two beautiful boys after the potential prospect of not being able to have any!!

Let's talk about what we have gone through and what keeps us going so we can help others who need our hope, joy and love.

posted in Cancer Survivors - 0 replies